Sophia has yet to wake up. She coughs but has no gag reflex. So on Sunday afternoon we will be extubating her. She can breathe on her own, her lungs and everything are working...But since the bleed injured the brain stem which controls gag...her gag reflex may never come back. Plus the tumor could be pressing on those nerves.
Without a gag reflex she cannot control her secretions. They will be putting her on everything they can medically to keep her comfortable. Meds to keep her semi sedated and try to control her mouth secretions.
Medically she is stable now and the doctors believe this is the best time to do it. Otherwise being on the tube longer presents a whole new host of problems.
Of course there is no magic ball to know what her body can do...But without a gag reflex it will likely be a matter of days until she passes...weeks at the most.
It was not an easy decision...But given her injury she has no quality of life. Plus, the tumor is aggressive and fast growing and without chemo to slow it down she would probably pass soon one way or the other.
This way we can at least hold her. Talk to her, comfort her, soothe her...say goodbye without all the tubes and wires connected.
My arms ache to hold her again.
We are not giving up. We believe God can do a miracle still...But ultimately, though it's hard, our prayer over the past few days has been for His will to be done.